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I'm going to ask you all a question. It's one that I know could be
rather controversial, and people really have some strong opinions one
way or another. But, I'd still like some thoughts. First, the question,
then an explanation.

When does a little bit of vision beyond light perception turn into
trouble if it's causing physical pain?

I've tweeted about light, and I've probably written about it here too,
especially over the last several months. I've had light-sensitivity
problems since I was in high school. At the time, the quack of an eye
doctor that I went to told me that I had little to no pigment in my
eyes, so the light came through more and that's why I was uncomfortable.
About a year after that statement was made I had a cornea transplant.
Without it I could have lost my right eye. After the transplant, I had
major issues with light, and that was because the graft was trying to
reject, and the cornea specialist that I was seeing at the time did an
amazing job of trying to reverse the rejection.

I've continued to have problems with light since then, and lately it's
getting to the point where I just can't even find sun glasses dark
enough to make a difference. A couple of years ago I got some
prescription glasses that were supposed to go from light to dark
depending on my environment, and they were absolutely useless.

Over the weekend I had a headache that just wouldn't go away. The cause
of the headache was from sleeping wrong, and that happens sometimes. The
thing is though, for almost the entire day on Saturday, I tried pretty
much everything to get the headache to go away, and it wasn't until I
thought of using a sleep shade that completely blocked out all light
that the headache finally went away completely. Even when I don't have
an actual headache, I've got pain. The lights in my cubicle here at work
have been removed, and I have to keep my monitor off pretty much
constantly now, and yet it's still not enough.

People have always told me that my eyes are a very unique shade of blue,
and I've gotten lots of compliments on the color over the years. But,
lately I'm starting to wonder if it's time to start considering other
options. I just don't know what the right thing is in this case. Also, I
know there are so many people who would give anything to have even the
little bit that I have now. I rarely ever have any lights on at all when
I'm home, and I keep my drapes closed pretty much all the time. It's
just not enough. I know that in the end, anything I do has to be my
decision, but I'm curious to know what others have to say. Now though,
I've got one more hour of work, so it's time to get back to it.

You Have To Do What's Right For You.

Date: 2011-02-01 03:55 am (UTC)
From: [identity profile] lulu-bear66.livejournal.com
Hi, Caroline. My husband has a younger brother. He has a condition, I don't know exactly what, but his eyes were causing him constant pain. It affected his life every single day. He couldn't enjoy anything particularly because he was always in pain. That is no way to live. He had the eyes removed, and now has arteficial ones, and he says it's the best decision he ever made. He is now completely pain free, and can enjoy his days, not dread them.

In my view, having beautiful eyes isn't much good to you if they are making your life uncomfortable. I think having to have your drapes closed, keep all lights off, try to find glasses you can wear to keep out bright light, well, I'd find it hard. In the end, you need to do what will give you the best quality of life. It doesn't matter what anyone else says or thinks. Controvertial it may well be, but you have to live in your own body, no one else does. You must do what is right for you.

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Caroline Toews

May 2015

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